Helen's story: Living with multiple medicines

Find out about Helen and hear her speak about the value and challenges of taking multiple medicines.

Female
Age at interview: 58
Number of medicines: 10
Cultural background: Anglo-Australian

 

Background

Helen lives with her partner in the inner-north of Melbourne. She has one grown daughter. She works full-time as a public servant in state government and loves to travel.

 

Current medicines and conditions

Some medicines are taken regularly; some are taken only as needed.

  • Lisador (adiphenine hydrochloride, metamizole, promethazine): hypertension and congestive heart failure—Helen has reduced dose by 50% with increased exercise
  • Moduretic (amiloride hydrochloride and hydrochlorothiazide): hypertension and fluid retention—anti-hypertensive and diuretic
  • Seretide Accuhaler (fluticasone propionate, salmeterol xinafoate): asthma and COPD
  • Kenacomb ointment (nystatin, neomycin, gramicidin, triamcinolone acetonide): treatment of red and itching skin conditions
  • Xxyzal (levocetirizine): hay fever and allergy symptoms
  • Ventolin inhaler (salbutamol): asthma
  • Panadol Osteo (paracetamol): used for the management of arthritic pain
  • Chondroitin (OTC): considered beneficial for cartilage and joint pain
  • Krill oil (antioxidant, EPA, DHA): recommended by doctor and podiatrist
  • Glucosamine: considered beneficial for cartilage and joint pain.
 

About Helen

Helen is 58-years-old and has spent most of her working life in the public service in Victoria. She is also a keen traveller and her priority, in terms of the management of her current health conditions, is to continue to work and travel for as long as possible. Her current medications for hypertension, arthritis, asthma and eczema have enabled her to modify her arthritic pain, respiratory symptoms and skin conditions, but sometimes she feels that she may now be counting the cost of not having paid enough attention to her health and lifestyle when she was younger. Increased exercise has led to a decrease in the dose of one anti-hypertensive medication.

More about Helen

Helen was no stranger to the use of medicines, having been diagnosed with asthma, eczema and hay fever in her childhood and teenage years. After moving from the country to the city, she benefited from an improvement in her medical management though she admits that she was not always a compliant patient and her symptoms were not always well controlled. While still in her 40s, she was diagnosed with hypertension and said that she felt she was getting old before her time. It seemed she was far too young to be on long-term medications for a chronic illness. Nevertheless, she was still not motivated to make any dramatic lifestyle changes.

With the onset of some new aches and pains, she started on a number of over-the-counter medications including glucosamine, chondroitin, Crampeze and krill oil, eventually taking nine a day of the latter when she discovered the dose she was taking was far too low. She says that she sometimes feels like a walking bottle of pills. The relatively recent diagnosis of arthritis has introduced further medications for ongoing pain and she is aware that this will be a chronic and worsening condition. She has also become aware of the rising costs of her medicines and wonders how she will manage in retirement on a reduced income.

As new medications have been added, she has decided to dispense with some of the over-the-counter medications as she was not really sure about their level of contribution to her overall wellbeing and it was hard enough to manage the essential ones. She also admits to a somewhat cynical view of complementary medicines and puts more faith in prescribed medication.

One of the things that Helen has struggled with is remembering to take her medications at the correct time, with or without food, especially when work is competing for her attention. It has also made her favourite pastime of travelling quite complex as she has to educate herself as to the requirements of each country she visits, customs regulations, the need for supporting documentation and ensuring that she has adequate supplies of her medication. On one holiday, she realised she did not have enough and lowered the dose to make it last. This resulted in considerable anxiety for the last two weeks as she was not sure what effect this would have. There is also the difficulty of trying to maintain the timings of her medications when travelling through changing time zones, but she is finding ways to manage this so that she will not forget.

While relying primarily on the advice of her doctor and other health professionals, Helen tries to improve her knowledge about her illnesses and medications by checking reputable sites on the internet such as those authored by government agencies or academic sites. It was here that she discovered a high concentrate product which enabled her to return to just one krill oil tablet a day.

Overall, Helen is a bit disappointed that her medications have not alleviated all of her symptoms, but is grateful that they have allowed her to continue to work and travel and is glad that they are readily available.

 

Listen to Helen's story

Helen can manage her medicines now because she is working full-time. She is concerned about how she will afford her medicines in retirement.
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Helen explains how she has prepared for an eight-week holiday overseas.
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Helen works in health and ageing policy. As a result, she has a particular view of dosette boxes and believes she does not need one yet. It would not be helpful as it would not address the problem of forgetting to take medicines at work.
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Helen finds it particularly difficult to remember to take her medicines when she is at work, as her primary responsibility is to attend to work-related matters.
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Helen encourages people to look at their medicines as being a help, rather than something to avoid, and to view them in the context of their whole life and other things they can do to ease their conditions.
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Helen has had to make some changes to her daily routines that are less than desirable.
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Helen has had to make some changes to her daily routines that are less than desirable.
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Helen is still in the process of getting used to her medication regimen. She has used humour to diffuse tough situations and over time she has been able to see the benefits of taking medicines.
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Helen credits Seretide with allowing her to be more active and to avoid hospital visits.
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Helen is coming to terms with the complexity and cost of her medication regimen, as well as what it means to be on an increasing number of medicines.
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Helen has had to reassure her spouse that she is taking an appropriate number of medicines. At work she is able to make a joke of them.
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Helen found it easy to manage her medicines in the beginning when they were new. She has become a little complacent over time.
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Helen found it easy to manage her medicines in the beginning when they were new. She has become a little complacent over time.
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Helen’s work in health policy means that she knows which websites are the most trustworthy. She finds credible information on the internet by limiting her searches to these sites.
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Helen is resentful about having to take a number of medicines for the rest of her life, particularly as they are not all working as well as she would like at reducing the pain from her arthritis.
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Helen describes what she does when she forgets to take a medicine, according to which medicine it is.
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Helen trusts conventional, prescribed medication the most, but is willing to try complementary medicines for herself.
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Despite having prepared very carefully before she went away, Helen ran out of medication when she was last overseas, which was a frightening experience.
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The Living with multiple medicines project was developed in collaboration with

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